Anthony's BBWP Sandbox

For A-T CureTeam runner Jeremy Goldsmith, the 2026 TCS New York City Marathon was about much more than crossing the finish line. It was an opportunity to honor a dear friend and support the fight against A-T. The post Running with Purpose: Jeremy Goldsmith Honors Derek at the 2026 NYC Marathon first appeared on A-T […]

Annika's commitment to the A-T community extends beyond her work at MGH as she has registered to join our A-T CureTeam at Walt Disney World Marathon Weekend this January 2027! The post Annika’s Racing for A-T! first appeared on A-T Children's Project.

We are sharing information about a clinical study called INSPIRE A-T, sponsored by Insmed, a pharmaceutical company researching A-T. The post Research Opportunity: INSPIRE A-T – Clinical Study Open for Enrollment first appeared on A-T Children's Project.

The U.S. Food and Drug Administration (FDA) has approved IntraBio’s drug AQNEURSA® (levacetylleucine) in the United States for the treatment of the ataxia seen in people with A-T. The post FDA Approves AQNEURSA for A-T in the US first appeared on A-T Children's Project.

A-T Caregiver Weekend Retreat will be in Boston in October! The post A-T Caregiver Weekend Retreat 2026 Announced first appeared on A-T Children's Project.