Anthony's BBWP Sandbox

Annika's commitment to the A-T community extends beyond her work at MGH as she has registered to join our A-T CureTeam at Walt Disney World Marathon Weekend this January 2027! The post Annika’s Racing for A-T! first appeared on A-T Children's Project.

We are sharing information about a clinical study called INSPIRE A-T, sponsored by Insmed, a pharmaceutical company researching A-T. The post Research Opportunity: INSPIRE A-T – Clinical Study Open for Enrollment first appeared on A-T Children's Project.

The U.S. Food and Drug Administration (FDA) has approved IntraBio’s drug AQNEURSA® (levacetylleucine) in the United States for the treatment of the ataxia seen in people with A-T. The post FDA Approves AQNEURSA for A-T in the US first appeared on A-T Children's Project.

A-T Caregiver Weekend Retreat will be in Boston in October! The post A-T Caregiver Weekend Retreat 2026 Announced first appeared on A-T Children's Project.

Matt Wilks Representing the A-T Children's Project at the Boston Marathon racing in memory of Andrew Martin, who had A-T. The post Matt Wilks Representing the A-T Children’s Project at the Boston Marathon first appeared on A-T Children's Project.